Tuesday, October 17, 2006

an unforgivable crime and an unforgettable survivor


A 14 year old Winnipeg boy with Spina Bifida was pushed and locked in a burning shed by 3 little girls and boy all under the age of 12.

When the story was first related to me, i was horrified, but i was also under the impression that the boy had died. He survived, after spending at least 5 minutes in shed hearing the kids dancing and taunting him on the outside. Parent's in the building complex finally came to the boys rescue. The boy's name is Brian McKay, remember it. He may have Spina Bifida but he proved yesterday that he was survivor. Just like so many individuals with Spina Bifida are survivors. While what happened to him was most definitely a crime against humanity, it only proves that now more then ever that individuals with disabilities need to step up and own their disabilities and learn to be proud of themselves and proud of the community they belong too. So many kids and adults with Spina Bifida slip through the cracks, and many feel unloved and outcast by society. Not just in everyday life, but in the disabled community as well. I should know i was one, i did slip through the cracks. I knew nothing about my disability, and it was easier to let kids pick on me because of it. How was I to know they were wrong in being ignorant? How was i to know that having a disability doesn't automatically make you a lesser member of society or weak. Brian McKay says in the article i have linked to this site that "his legs were too weak to kick down the door." I don't think that makes him a weak person. I mean he tried didn't he? He even tried to make friends with people in his neighbour and it's just sheer ignorance and intolerance that led to that horrific act against him. Neither him or his disability have any blame in the events that occurred.

We need to make the world more aware of the strength and vitality a person with a disability has. That A person with Spina Bifida has. It was for that reason that i started this blog in the first place. Not just to show the struggles i go through trying to cope with the sudden and gradual changes my body flung at me, but also to talk about my successes as well. To prove to myself and anyone else who is willing to listen, that I can be ANYTHING i want to be. I may have to go about things a bit differently, recognized my limitations and finds ways around or over them, but they aren't walls just obstacles that i am willing to tackle.

So I want to applaud Brian McKay for surviving. for talking to reporters, for making his story known. And i want him to never stop fighting or moving forward. There are quite a few people out there in this big wide world who just assume we will out of sheer ignorance. And i think it's definitely time we start proving them wrong. Not by starting to not give up on life but to keep showing them all of the millions of wonderful people who never do and never have and never will. The people who inspire me the most are persons with disabilities. Not because they have accomplished show much inspite of their condition, but because they have done so much more wonderful things with their lives then people who don't consider themselves disabled. Maybe it's because they thrive off challenge, and so called 'normal' people don't feel challenged so they are the ones that give up.

So i hope you read Brian McKay's story, and get your friends to read it, and they get their friends to read it. It is a story that should not be forgotten, and should serve as a bright vivid reminder of how many more challenges WE MUST overcome, because incidents like these should not happen, and it will take every individual that cares to stop it from happening over and over again.

Monday, October 09, 2006

Happy Thanksgiving


It has almost been a month since my last post! I feel like i haven't really stopped moving since then. I came out of my depression then went warp speed ahead. i suppose it is really hard to be depressed when you have very little time to think. Here is a list of some of the things i have accomplished in that time with a very short summary which i intend on expanding on later.

  • National Spinabifida Conference 2006: It was held at the Fantasy Land Hotel in Edmonton, and was a weekend full of so many events and sessions, a few emotional breakdowns, a very cute photographer, a whole bunch of just completely amazing people i am so glad i got to meet, and accumulated Sunday with a whole bunch of happy tears. and i don't cry happy tears very often.
  • I discovered that my friend Devon can actually be a very nice guy at times. Also discovered i really hate being locked in Bathrooms. First at a Sushi restaurant, and the next a flooded bathroom stall at a super store!

  • I went out to Karaoke with some older friends of mine and had a Blast. My friend is an amazing singer. too bad everyone else really sucked!
  • I planned Thanksgiving dinner for my roommate/ best friend, his fiance and their parents who haven't had a chance to meet until yesterday because they live out of town in opposite directions.

  • For the dinner i made a 30 slide timed presentation with pictures, video, music and stories for the happy couple.
  • I figured out how to fit ten people in my tiny apartment.

  • Made a Scarf for my friend and mentor Roxanne that looks like a green and white ribbon for spinabifida because she never had a chance to get any special necklaces or flowers at the conference and since she did an amazing job MC'ing the whole conference and being a wonderful friend i needed to do something nice for her.

  • I finally sent off an entry to this poetry contest in the city, i don't really think i will win, but entering is half the battle.
  • I've spent a lot of time with my boyfriend and sometime at his school getting to meet some really nice people and attend a few sessions on this big conference the school has every semester. It was very religious based and a tad overwhelming, but after sorting out all the information, i did find some very valuable pieces of information. which is always a good thing.

  • I have been working very hard at Physio. though every time i got there is I'm not having troubles catching an accessible bus, i have some sort of body ailment. a sore neck, a sore ribcage and more recently a sprained foot.

  • I GOT A TATTOO! it's a very stylistic dragonfly and most of the scabbing is off now and I LOVE IT! and it's located on the very front of my right ankle:



  • I am in this interpretive wheelchair incorporated dance class. I have only gone twice now but I am thoroughly enjoying the chance to move around and use all different parts of my body while also moving the chair and feeling the rhythmic movements of the wheelchair. the personal human interaction is also quite amazing. In my chair i build a bubble around myself, but in this class you have to break down those barriers, but in a very safe and very accepting environment. I've noticed that it is helping me break down that bubble in my outside life as well.

  • I will also be on the steering committee to bring a wheelchair dance program to Edmonton, and I'm very excited about that.
  • I went to a seating clinic for my chair. and after using my beast for a whole week, which was awful, i was given the test chair back, slightly modified and with really great seating! so hopefully my chair will get ordered this week and i will get it with in six weeks, cross your fingers! i also have to give this chair back on Tuesday and go back to the beast until my new one arrives :(
  • My Physio who is helping me get funding is back from vacation so we can work on getting the last $600 i need for my boots.

  • I have had a ton of doctors appointments, and i still haven't had an MRI to see if my surgery is actually working because it got overlooked in the paperwork over the summer. So hopefully i will get that soon!
  • Oh and finally i spent all week and weekend cooking and organizing and cleaning and finally hosting a huge thanksgiving dinner, and everyone left happy and excited so I count that as a great success. my friend's dad is also going to show me a book on event planning that he uses when he caters events, and he caters a lot of events. So i think he thinks i have potential! yay potential!

  • And today i get to spend at my boyfriend's curled up on his couch watching movies and drinking tea, while his mom cooks another turkey dinner. And I think i have a very good reason for wanting to stay out of the kitchen! As it is I'm bring over lots of leftovers!

so that is the short version of why i have been lax in updating my blog! i will try to be better in the future.

oh and if you want to see something really cool check this out:


First wheelchair backflip - Summer 2006
http://www.youtube.com/watch?v=o7f1Aa-Y1x0